Hi John, hi Krissy,
As I may have written in the past, I have some professional experience with people who are battling with MDS and similar problems. It is a tough and long battle, with many complications. There will be downtimes, like you're experiencing now. It is invaluable that you have the support around you that you have. It is unique in my (limited) experience to also have a world-wide community around you, many of whom you have never met or even spoken to. I am 100% confident that the professional care you're receiving over in Hershey will be of the highest level, and you know you're in good hands there.
Although I cannot look into the future, I feel assured that this cloud will pass, and that you'll walk out of there in good and short order. Meanwhile, keep your high spirits and confidence. You'll get there.
Guido aka Pharmolo [Northern Trip]
Showercloud over the coastline near Shader, Isle of Lewis, Scotland